There was no reason for her to tell me this. We left early, taking into account the traffic that turned out to be eerily absent. She couldnt be alone. I had set my intention to help my friend, to hold her hand and go with her while she went to peer over the cliff, the cliff that, coincidentally, I fell off. The title piece in the autobiographical essay collection These Precious Days by Ann Patchett is about her unexpected friendship with Tom Hanks's personal assistant, Sooki Raphael, who ended up living with Patchett and her husband in Nashville while enrolled in a medical trial for pancreatic cancer. I said good luck because there was nothing else to say. First the tornadoes, Sooki said, taking picture after picture, the giant root systems pulling up slabs of earth taller than Karl, the bright spring grass meeting the sidewalk at right angles. I lost her for a while, and then she was back again. The car I was locked into was now hurtling down through a million winking flagella, every one a different color. I studied what did not come naturally, she told me. It seemed we had just driven through the U.S. epicenter of the coronavirus. People were dancing, laughing, and so she went outside. He wasnt listening. In return, she sent me pictures shed taken of Los Angeles, a woman in an orange sari sailing past a city bus on a bicycle. I guess you never know if youre the person whos going to look good bald until youre bald.. PATCHETT: So I first met Sooki Raphael backstage when I was interviewing Tom for his collection of short stories. Yoga was Sookis necessary social hour, and what I got in return was time with Sooki. While I was in Virginia, a series of tornadoes hit Nashville. The paintings were bold, confident, at ease. Our writers hold no party line; their only allegiance is to clarity of thought, elegance of expression and independence of opinion. feb. 14, 2020: PSJust to be clear, I ran all this by Karl first, who said, I favor having her here. (Very Karl.). She was perfectly willing to talk, she wanted to, and now she was leaving in the morning. Still, Im able, for a while at least, to pick up the thread and walk it back. Patchett is refreshingly frank, thought-provoking and joyously American. She had transferred her life into brushwork, impossible colors overlapping, the composition precariously and perfectly balanced. There was a little kitchen in the dorm, and I got a book, and I made Thanksgiving dinner. Never. Its HARD. Of course I opted for tattoos. Something happened to it while I was in the shower., She shook her head. She had been diagnosed with pancreatic cancer a year after we met. She would pour color into my inbox for a while and then be gone again. How much is the Raphael worth? Our hearts have been filled with the comfort his films have given us, and that, coupled with the fact that hes a nice man, made it easy to line up a group of booksellers who were eager to pitch in. Its too weird., There is no weirdness left between us, I said. They were talking like old friends. There were so many other people who would have done anything to be with herher mother and husband, her daughter and son and grandchildren, her sisters and all of her friends. A few more pages would send me off to sleep, so I went in search of a short story. I emailed him at work. Locked out of your account? Three time cancer survivor, MariannaCuozzo, talks to SurvivorNet about how art helps her express herself. We found a diner down the street from where I would be speaking. We didnt know each other, and for the most part our correspondence had come after this defining fact. She learned to solo an airplane before she learned to drive. I had interviews scheduled all day on Tuesday, Sooki had chemo on Wednesday, and my friends were leaving for California on Thursday. These Precious Days by Ann Patchett reviewed. Theyve been exposed to it?. To introduce Karl into this narrative as a general internist (he calls himself a pediatrician for adults) would be reductive. We had been together for the duration of this new world. PET scans) were showing no sign of disease. I knew I should sit with her at the table but I couldnt imagine it. One thing led to another chief among them, finding out about Raphaels illness and soon, the movie stars longtime assistant had moved into her house. The park was packed this morning. No doubt if Tom Hanks and Ann Patchett believe their friend to possess such wonderful qualities, she probably is a saint. Moving Forward after Losing a Loved One to Cancer. He was tall and slim, happily at ease, answering questions, signing books. The three of us were standing, back of the theater in the dark. My friend Sister Nena had just called. Her love and passion and beauty will continue to live in her paintings, and in all of us who were privileged to have entered her world. Rita Wilson recently posted a tribute to her friend, Sooki Raphael, who painted throughout her treatment for pancreatic cancer. Karl, being Karl, took the officer around the corner to explain the situation. dec. 27, 2019: Sweetest Ann, I am traveling todayjust for the dayup to Stanford for a second opinion, with the magicians elephant in my carry-on bag. Im just wondering if you got in the habit of not talking about yourself because of the work you do. I told her about a friend of mine who worked as an assistant for a hedge-fund manager in New York, and how she parked every piece of herself at the door when she went to work in the morning. This was not a two-hour journey. I didnt know how the story would end. That was what we had to hold on to, and so we held on. I worked at the Bronx Zoo during school and then I did the whole bat thing. Its funny, but all this time I was sure it was exactly that. FOLFIRINOX had also given her a profound aversion to cold. But over time the idea drifted to the back burner. They would leave in four days. I wonder whether it isnt easier here because you dont have to comfort us, you dont have to make us feel better about the fact that youre sick. I met the hosts of the event and a few people who worked for them. Okay, he said. Later that day we sat side by side on our yoga mats, Sookis head wrapped artfully in a scarf. Simply put, Karl makes rain. Karl is not waiting on a thank-you note, I promise. Sookis a pilot! Karl said. We were sitting at the bar at California Pizza Kitchen at four oclock in the afternoon. In life, time runs together in its sameness, but in fiction time is condensedone action springboards into another, greater action. Going forward, the lights may as well be off. He told SurvivorNet that after losing his wife, Alice, to a two-year battle with ovarian cancer, hell never really get over losing her, but he does hope to move forward. I now knew that shed had a Whipple at Duke and twelve rounds of FOLFIRINOX followed by twenty-eight days of radiation over five and a half weeks at UCLA. She was indefatigably pleasant and warm while maintaining her distance. What became of them? As the number spiked this week at 1700 U/L, I ran out of excuses, and my PET scan on Wednesday showed a return of the cancer to my liver. Sooki and I stood together in the kitchen, one of us washing the vegetables, the other one chopping, making it up as we went along. In bed the night before, I asked Karl, How do you think this is going?, He put down his crossword puzzle. Pay It can be a character, a place, a moral quandary. It's by Ann Patchett. Do you ever miss being alone in your house? she asked me once. I didnt see how it could hurt to ask. Death was there during those long, sunny days. A friend who was well versed in the experience brought them over early in the morning on Memorial Day. Copyright 2022 Topanga New Times, Published by Design Like It Matters, Inc. Login to add posts to your read later list. I had met Sooki, after all. She sent updateschapter eight now, chapter twelve. It would have to be for this story to continue. How Much Is A Raphael Painting Worth? It was so hard for her to talk. We would all proceed with our lives except that now we would be together. I wanted to call and tell her how it had all turned out. Then Sooki and I went to the kitchen, mixed our pre-measured packets of mushroom powder in with yogurt, and poisoned ourselves. Marriage also meant that I would listen if he tried to talk me out of it. They sailed to St.Barts in a beautiful old wooden boat named Christmas. It's about Patchett's unexpected friendship with Sooki Raphael, Tom Hanks' personal assistant, which developed when Raphael underwent chemo treatment while living at Patchett's house in Nashville at the start of the pandemic. . In time, all I would have to say was, Its Friday. I waited but nothing came next. I just keep moving forward. We are. She made the time, stitching days together. And this led to you meeting Sooki. She had moved in before the pandemic. Sooki was married? I knew people in college and graduate school who took mushrooms, and then about thirty years passed before I heard anything about them again. The months shed lost not being in chemo while they struggled to locate the new tumor had put her perilously behind. Thats worth everything.. They were lucky and the fire skated past. I would ask them at the end of the event, depending on how much time we had. Assistant Sully (2016) Assistant Bridge of Spies (2015) . The tumor in her liver was shrinking. Gingerly we picked our way forward. She traveled the world as the personal assistant to one of Hollywoods biggest stars. She needed me to take her to the hospital for an X-ray. Shed scarcely left the house for more than three months and yet it was impossible to push the world back into the Mary Poppins suitcase. I paid the check. I hadnt meant this to be my career. Its not like youre stuck in one place. I would have given her a hug but for the pandemic. We had just passed Stuyvesant Park when the first tower fell. Afterward we sat up at the hotel and talked about this new coronavirus and whether the rest of her tour would be canceled. Still, it seemed possible I could get off the ride early by expelling the mushrooms. I was taking in every precious day. A man answered. I must have dropped it. The money behind Ron DeSantiss populist faade, What the American Academy of Arts and Letters taught me about death. Id written a childrens book and was about to go on tour. They arent hard to come by around here; my office is made up of piles of books, mostly advance-reader copies that have been sent to me in hopes Ill write a quote for the jacket. Sooki was diagnosed with pancreatic cancer, and Patchett's husband Karl is a doctor with some serious hookups, so Patchett arranged for Sooki to come to his is the author, most recently, of The Dutch House. The ones who stayed turned out to be the ones I was interested in. We were sitting in the den at 7:30 am. Why couldnt she see that? An epilogue describes how before Sookis death they manage a day on the beach and a celebratory exhibition of her paintings. So all the other girls went home. Everything was lined upexcept Sooki didnt want to go. It had been happening for a while. Go together. You might not see how everything threads together as you read along, but when you look back from the end of the story, the map becomes clear. Then, we ended up staying in touch very lightly - you know, an email every month or two. (These Precious Dayshas a portrait by her of Patchetts dog Sparky on the cover). Tom Hanks and Rita Wilson lost their friend Sooki Raphael to pancreatic cancer earlier this year. This is a great read. A month later, I still hadnt seen all the clothes she had brought with her, and I never saw the cold caps. Ann Patchett one night happened to read a short story by the actor Tom Hanks, surprised by its literary quality. There was a delicacy about her that was well-suited to baldness. I can fly you up, Karl offered, once her mother was safely home. I was starting to understand that what she needed might have been color rather than conversation, breath rather than words. But of course I was the one who took everything. I had set my intention going in: I wanted to help my friend. RoseGallery is pleased to present These Precious Days, a solo exhibition of paintings by Sooki Raphael, on view from 10 April until 10 May, 2021. She had to pack her boxes the next day, Tuesday. Sooki had come to our house thinking shed be staying with someone who was gone half the time and busy the other half of the time. You have a pretty head, I told Sooki when the job was done. KELLY: And the timing of this - she comes to live with you while she's doing the treatment, and this turns out to be the beginning of the pandemic. And I'm always taken aback because it feels a little like asking a parent, who's your favorite child? It took me a few weeks to figure this out but soon I could track it, the way her voice got quieter, the way she was less likely to look me in the eye. I no longer needed the protection. I cant tell you how appreciative I am. She was the magnet in the compass. Sooki was coming as a patient, and more than a little of the work was going to fall to him. Get help here. Sister Nena shook her head. That had been one of her greatest fears about coming to stay with us in the first place, that she would be unable to take care of herself, that she would be a burden, that she would embarrass herself. I asked Sooki if she had any interest in trying psilocybin. The treatments left her tired, but she was managing. How was that possible? And who wouldnt be given the fact that Raphael didnt really emerge as an artist until her pancreatic cancer diagnosis in November 2018. The meeting led to Patchett asking Hanks on a "lark of the highest order" if he would narrate the audio version of her novel The Dutch House the ensuing . Sooki worried about her mother, who had been admitted to a hospital near Rye Brook for a urinary tract infection. Tom and Rita were in Australia, where he was about to start shooting a movie about Elvis Presley. It has to be one of the most extraordinary stories of lockdown how Tom Hanks's assistant Sooki Raphael, undergoing treatment for recurrent pancreatic cancer, came to be living in the basement of the novelist Ann Patchett and her husband Dr Karl VanDevender. Wednesdays chemo hit Sooki on Friday afternoon. Learn more about SurvivorNet's rigorous medical review process. I told Sister Nena the whole story while we sat in the waiting room, her foot propped up on a wheelchair. Ours was an ephemeral connection common to the modern world, writes Patchett. The first door opened and I walked through. The days went on and I could feel Sooki slipping, hounded by her own indecision. What was the line of childrens clothing called? 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Outside the rain was dark and lashing. But after years of infections, she decided to remove her implants and go flat. Her artwork reflects a deeply personal exploration of body image and sexuality. And then pancreatic cancer. We kept a common grocery list on the kitchen counter. But of course the thing to do would be to go, wouldnt it? I wanted to say hello very quietly so as not to bother her. The only other option was to go with stickers which could shift or come off in the shower. Twenty-five people died in Nashville the night of those tornadoes. I think I know what Im doing when in truth I have no idea. Three blue tattoos on the same plane as my prominent abdominal scar, it would hardly matter. It had been no more than seven minutes start to finish. Sooki got a stool and a towel and went to sit on the back deck. He claims our lives are better for all the people I bring into the house. He recommends books and asks for recommendations. She seems very nice, Karl said once we were in the kitchen. A year and a half had passed since I had picked up his book in my office, and this was where it had taken me: Tom Hanks was willing to read The Dutch House. When she gave us the painting she had done of Sparky on the back of the couch, I felt as if Matisse had painted our dog.. She was disappointed. What a good idea. The paintings came from a landscape of dreams, pattern on pattern, impossible colors leaning into one another. Paintings by Sooki Raphael. There were pictures of her at twenty-two, beautiful and dark-eyed, standing on somebodys desk in little canvas tennis shoes, her gloved hands holding a bat and a net. Tell me the news of the great world, Karl would say when he got home from work, and since many were the days I didnt leave the house, I relied on books and phone calls and emails in order to have something to contribute. New book of essays tells story. Timeless stories from our 172-year archive handpicked to speak to the news of the day. This wasnt out of the ordinary for me, as Im sure it wasnt for her. Arent we talking about doing this together?, Oh, I said. RELATED:Tom Hanks and Rita Wilsons Friend and Assistant Dies from Pancreatic Cancer; See Their Heartfelt Tribute to the Artist, A post shared by Rita Wilson (@ritawilson), Throughout her illness she painted, she saw beauty, she created and she never wavered, Wilson said. She had wanted her life to be different, and now it was. She had wanted to be a better person, and here she believed she was better. Dont worry about it, Tavia said. I was leaving for Virginia. My husband, Karl, and I sat in a dressing room with them for an hour and a half between sets. There was no reason to offer unsolicited opinions on a subject I knew nothing about to a person who had just gotten into my car, but the thought of a frozen gel pack on my own head struck me as boundless misery. Most recently, she had a solo exhibition of paintings at ROSEGALLERY called These Precious Days, just like Patchetts title essay. Curiosity is the rock upon which fiction is built. Do you even realize your life isnt normal? Niki said when I announced my trip. How other people live is pretty much all I think about. I knew there was a part of her that believed that maybe what Nashville had to offer in terms of fighting cancer was happening in our house, that she was improving because she was with us. Sooki came outside and was caught in the spectacle. Its okay for us to be in the same room, Sooki said, a statement rather than a question. I had pictured her going through this alone, a conclusion I reached on account of a lack of information and a florid imagination. Id been in touch with Sooki once or twice when there was talk of a bookstore in Santa Monica, and now I pinned my hopes on her as she dug into Toms schedule at Playtone, his production company. The rain went on for another half an hour, and when it gave up I put Sparky on his leash and the three of us went outside to wander and gape with our neighbors. I promise to be a more reliable friend and pen pal. How could anything have been saved? Sooki, I found out, was sixty-four. Karl looked up the name for it on his phone. I will keep you more closely posted as I move ahead (in the right color shoes). If she missed a session, would her hair fall out anyway? Just a guess. I had liked her coat very much, those pink peonies as big as my hand. No events scheduled for January 18, 2023. She agreed to stay for a few nights, but after that she said she would rent a car and find a hotel. She brought her paintings upstairs to show us: a person who was too shy to say good night most nights was happy for us to see her work. The essays range in subject, but often consider relationships in Patchett's personal and professional life, including with her father and stepfathers; her decision not to have children; the close friendship she develops in the early days of the COVID-19 pandemic with Tom Hanks' assistant Sooki Raphael. They were dead, the wires, werent they? The plan was that she would go home to Los Angeles during her weeks off, and once UCLA started the trial, she could go home permanently. It wasnt that I could kill someone; it was that I could kill her. Come on, Sooki, he said, his voice gone grand. She had a double mastectomy and originally got implants with reconstruction. Books are fun! . If I can borrow your car, Ill drive back to the airport., I shook my head. I know how to structure my time. I presented him with the studies from Johns Hopkins. My artwork is very reflective of my cancer journey, Cuozzo says. On the morning of September 11, 2001, I was sitting in a caf in the West Village with my friends Lucy and Adrian when a woman ran in and said a plane had just hit the World Trade Center. For them the mystery is solved by the act, and I understand that; its just not the way I work. We had never spoken on the phone. My whole life Ive wanted this time. We will never know all the things other people worry about. Sooki agrees to stay for a few nights. How do you fly from Nashville to New York in a single-engine plane for a two-hour visit? I was trying to read her lips. And if you decide you want to stay, well, you dont have to give that up either., Sooki the Tireless, Sooki the Indefatigable, looked as if she was about to split apart. Ive never experienced anything like it, or you. And this is how Sooki became part of something bigger than herself, pure art destined to express the beauty and mystery of the world that she could see more than most of us can. She painted and slept and did her work; she had her Zoom meetings and her Zoom gatherings with friends. feb. 14, 2020: Oh, Ann. And so I just relied on a book to get me through. After her first round of cancer, while she recovered from the Whipple and endured the FOLFIRINOX, she started to paint like someone who had never stopped. Now I look like an improvised elementary school art project, and in addition to owning my permanent tattoos, I have to nurture my three little stickers and hand-drawn sharpie marks so they last six weeks. A week later, Tom Hanks started recording The Dutch House at a studio in Los Angeles. A neighbor of the Patchett's described Sooki as a saint. I leaned over to look at her phone. She wasnt about to tell me she looked good, but it was clear what I was talking about. Karl worked out the plans. I can write an entire novel without showing a page of it to anyone. She told me how lovely it had been to lay down the burden of her own vigilance. Karl and the dog went out on the front porch to read the newspaper. We had found each other and we would not be lost. That shed always been so careful not to cross any lines, not to advance herself through connections shed made through him. Pancreatic cancer is an aggressive disease that is difficult to detect because symptoms - including jaundice and weight loss - typically present at a later stage in the cancer's development. Someone wound the clock and suddenly the second hand, so long suspended, began to tick again, pushing us forward. Its important to think about your intentions before you start, my friend told us. So there she was, stuck with us. She met a group of sailors who had sailed around the world. Visit our website terms of use and permissions pages at www.npr.org for further information. He thanks me for it. Blind Boys of Alabama with Special Guest TBA. And the only time I ever feel paranoid about death is when I'm in the middle of a novel because I don't want the novel to die. But now she's memorialized in author Ann Patchett's latest book, These Precious Days: Essays, which will be released Nov. 23. There she was in the passenger seat, a shy person with a quiet voice. There was no money or freedom or wherewithal to buy another ticket and see him sooner. Theres usually a guy working the light board and the mics who talks to me for a minute, though tonight the guy talking was Tom Hanks. Id seen her work in action. Im sure these words cant adequately convey what was such a radiant message, but it stayed with me so strongly as I woke up during the night, and thats the best I can describe it. In some ways its not unlike putting together my own life. The spring was cold and wet and endlessly beautiful because of it. I tried to enjoy it but it was difficult to breathe. The very fact of her existence in our house kept me on track. PATCHETT: Every single thing was from scratch. Id love to do your audio book! Its there for us at all times. Subscribers can find additional help here. Whether all of this together was what helped, or whether she had made up her mind to see only the good, I couldnt say. It was over. It was just me in the house. She met Sooki Raphael,. Sooki thought about it, or she thought about having to tell me. Farley announced the news of his opt-out in an Instagram video saying, in part, I cannot afford to lose another parent or loved one Though the competitor in me badly wants to play this season, I cannot ignore whats going on in my heart, and I must make the decision that brings me the most peace., 2021 NFL Draft Prospect Caleb Farley Tells SurvivorNet His Mom Was Like a Superhero Before She Lost Her Battle with Breast Cancer; Heres What Got Him Through. In Nashville the night of those tornadoes Sookis head wrapped artfully in beautiful... 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